Building and finding support for patients with MacTel
Having a support system can help you deal with the challenges of MacTel.
Talking to family and friends
After you receive a MacTel diagnosis, it can be difficult to tell family and friends for fear of how they might react or change how they view you.
It is normal for you to feel anxious about revealing your diagnosis. Telling those closest to you is often the first big step toward building a support system.
I don't feel like it's my fault, so I don't feel like I have to hide it from anybody.”
Caring for someone with MacTel
If someone you care for is diagnosed with MacTel, it is important to remember that while they may not have completely lost their central vision, it may be changing.
Depending on how far along they are, people with MacTel might find it easier to see in certain lighting or layouts of their surroundings. Helping with these adjustments can make it easier for them to see and move around their environment.
People with MacTel often need both physical and emotional support.
Someone you care for may need help with things such as paperwork, cooking, and adjusting their home to fit their condition. However, they may also need emotional support as they experience what may be a major life change.
Resources for the MacTel community
You may also be interested to:
This is not a journey you have to take alone.
Neurotech is constantly innovating new ways to protect against vision loss. We’re committed to providing education about MacTel and partnering with support and advocacy groups to meet the needs of this community.
