Building and finding support
for patients with MacTel

Having a support system can help you deal with the challenges of MacTel.

Image of three happy people sitting around a table eating together

Talking to family and friends

After you receive a MacTel diagnosis, it can be difficult to tell family and friends for fear of how they might react or change how they view you.

It is normal for you to feel anxious about revealing your diagnosis. Telling those closest to you is often the first big step toward building a support system.

  • I don't feel like it's my fault, so I don't feel like I have to hide it from anybody.”

    - Person living with MacTel

Caring for someone with MacTel

If someone you care for is diagnosed with MacTel, it is important to remember that while they may not have completely lost their central vision, it may be changing.

Depending on how far along they are, people with MacTel might find it easier to see in certain lighting or layouts of their surroundings. Helping with these adjustments can make it easier for them to see and move around their environment.

People with MacTel often need both physical and emotional support.

Someone you care for may need help with things such as paperwork, cooking, and adjusting their home to fit their condition. However, they may also need emotional support as they experience what may be a major life change.

Resources for the MacTel community

Prevent Blindness logo
Prevent Blindness logo
American Foundation for the Blind logo
Foundation Fighting Blindness logo
Foundation Fighting Blindness logo
The Carroll Center for the Blind logo
The Carroll Center for the Blind logo

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See what the journey with MacTel may look like

This is not a journey you have to take alone.

Neurotech is constantly innovating new ways to protect against vision loss. We’re committed to providing education about MacTel and partnering with support and advocacy groups to meet the needs of this community.

Older man sitting with gaze directed away from camera
Older man sitting with gaze directed away from camera
Not an actual patient.